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This patient registry arises from the project E-HOD
which has received funding
from the European Union,
in the framework of the
Health Programme 2008-2013
EAHC Health Programme
Participating centers
Number of partipicating centers:   75      
Number of all registered patients:   654      Number of all CSP-patients:   195
Number of active patients:   646      Number of active CSP-patients:   195

Please click on a center for more information...

Austria
Bregenz
Landeskrankenhaus Bregenz
  Registered patients - Total: 14 - Active: 13
Belgium
Bruxelles
Cliniques Universitaires St Luc, Université Catholique de Louvain
  Registered patients - Total: 5 - Active: 5
Gosselies (Charleroi)
Centre Agréé des Maladies Héréditaires du Métabolisme
  Registered patients - Total: 0 - Active: 0
Brazil
Belo Horizonte
Universidade Federal de Minas Gerais (UFMG)
  Registered patients - Total: 1 - Active: 1
Campinas
Universidade Estadual de Campinas (UNICAMP)
  Registered patients - Total: 2 - Active: 2
Fortaleza
Hospital Albert Sabin
  Registered patients - Total: 0 - Active: 0
Porto Alegre
Hospital de Clínicas de Porto Alegre
  Registered patients - Total: 14 - Active: 14
Rio de Janeiro
Hospital Universitário Pedro Ernesto (HUPE)
  Registered patients - Total: 0 - Active: 0
Rio de Janeiro
Instituto de Puericultura e Pediatria Martagão Gesteira
  Registered patients - Total: 0 - Active: 0
São Paulo
Universidade Federal de São Paulo (UNIFESP)
  Registered patients - Total: 18 - Active: 17
Vila Velha
Hospital Infantil e Maternidade Alzir Bernardino Alves (HIMABA)
  Registered patients - Total: 0 - Active: 0
Switzerland
Lausanne
Centre des Maladies Moléculaires
  Registered patients - Total: 17 - Active: 17
Zurich
Kinderspital Zürich, Universitäts-Kinderkliniken
  Registered patients - Total: 10 - Active: 10
Colombia
Pereira
Clínica Comfamiliar Risaralda
  Registered patients - Total: 4 - Active: 4
Czech Republic
Prague
Charles University & General University of Prague, First Faculty of Medicine
  Registered patients - Total: 40 - Active: 40
Germany
Heidelberg
Universitätsklinikum Heidelberg, Zentrum für Kinder- und Jugendmedizin
  Registered patients - Total: 35 - Active: 35
München
Klinikum Dritter Orden
  Registered patients - Total: 1 - Active: 1
Denmark
Copenhagen
Klinisk Genetisk Afdeling Rigshospitalet
  Registered patients - Total: 14 - Active: 13
Spain
Albacete
Hospital General Universitario de Albacete
  Registered patients - Total: 2 - Active: 2
Barakaldo
Hospital Universitario Cruces
  Registered patients - Total: 6 - Active: 6
Barcelona
Hospital Universitario Valle de Hebrón
  Registered patients - Total: 5 - Active: 5
Barcelona
Sant Joan de Deu
  Registered patients - Total: 13 - Active: 13
El Palmar
Hospital Universitario Virgen de la Arrixaca
  Registered patients - Total: 2 - Active: 2
Las Palmas de Gran Canaria.
Complejo Hospitalario Universitario Insular Materno-Infantil de Gran Canaria
  Registered patients - Total: 4 - Active: 4
Madrid
Hospital Infantil Universitario Niño Jesús
  Registered patients - Total: 5 - Active: 5
Madrid
Hospital Universitario 12 de Octubre
  Registered patients - Total: 7 - Active: 7
Madrid
Hospital Universitario La Paz
  Registered patients - Total: 2 - Active: 2
Madrid
Hospital Universitario Ramón y Cajal
  Registered patients - Total: 6 - Active: 6
Malaga
Hospital Materno-Infantil Carlos Haya
  Registered patients - Total: 6 - Active: 5
Palma de Mallorca
Hospital Universitario Son Espases
  Registered patients - Total: 4 - Active: 4
Santa Cruz de Tenerife
Nuestra Señora de la Candelaria
  Registered patients - Total: 4 - Active: 4
Santander
Hospital Universitario Marqués de Valdecilla
  Registered patients - Total: 3 - Active: 3
Santiago de Compostela
Complejo Hospitalario Universitario de Santiago
  Registered patients - Total: 20 - Active: 19
Sevilla
Hospital Universitario Virgen del Rocío
  Registered patients - Total: 11 - Active: 11
Valencia
Hospital Universitario La Fe
  Registered patients - Total: 7 - Active: 7
Valladolid
Hospital Universitario Río Hortega
  Registered patients - Total: 2 - Active: 2
Zaragoza
Hospital Infantil Miguel Servet
  Registered patients - Total: 7 - Active: 7
France
Angers
CHRU Angers
  Registered patients - Total: 3 - Active: 3
Bordeaux
Centre des maladies héréditaires et métaboliques, Hôpital Pellegrin
  Registered patients - Total: 4 - Active: 4
Lille
Hôpital Jeanne de Flandre
  Registered patients - Total: 5 - Active: 5
Lyon
Hôpital Femme Mère-Enfant
  Registered patients - Total: 0 - Active: 0
Marseille
Centre de Référence des Maladies Héréditaires du Métabolisme
  Registered patients - Total: 12 - Active: 12
Nancy
CHU Brabois Enfant
  Registered patients - Total: 0 - Active: 0
Paris
Hôpital Necker-Enfants Malades
  Registered patients - Total: 13 - Active: 13
Paris
Hôpital Pitié-Salpêtrière
  Registered patients - Total: 20 - Active: 20
Paris
Hôpital Robert Debré, Université Paris
  Registered patients - Total: 20 - Active: 20
Tours
CHRU Tours
  Registered patients - Total: 5 - Active: 5
United Kingdom
Birmingham
Birmingham Children's Hospital NHS Foundation Trust
  Registered patients - Total: 6 - Active: 6
Bradford
Bradford Royal Infirmary
  Registered patients - Total: 7 - Active: 7
Liverpool
Alder Hey Children's Hospital NHS Foundation Trust
  Registered patients - Total: 5 - Active: 5
London
Evelina Children’s Hospital
  Registered patients - Total: 16 - Active: 16
London
Great Ormond Street Hospital
  Registered patients - Total: 6 - Active: 6
London
National Hospital for Neurology and Neurosurgery
  Registered patients - Total: 33 - Active: 33
Manchester
Central Manchester University Hospitals NHS Foundation Trust
  Registered patients - Total: 8 - Active: 8
Salford
Salford Royal NHS Foundation Trust
  Registered patients - Total: 7 - Active: 7
Greece
Athens
Agia Sofia Children's Hospital
  Registered patients - Total: 1 - Active: 1
Croatia
Zagreb
Sveuciliste u Zagrebu, Medicinski fakultet
  Registered patients - Total: 7 - Active: 7
Ireland
Dublin
Temple Street Children’s University Hospital
  Registered patients - Total: 30 - Active: 29
Italy
Firenze
Ospedale Pediatrico Meyer
  Registered patients - Total: 0 - Active: 0
Genova
Istituto Giannina Gaslini
  Registered patients - Total: 16 - Active: 16
Rome
Ospedale Pediatrico Bambino Gesù, U.O.C. Patologia Metabolica
  Registered patients - Total: 31 - Active: 30
Netherlands
Amsterdam
AMC - Amsterdam
  Registered patients - Total: 0 - Active: 0
Amsterdam
VUmc Amsterdam
  Registered patients - Total: 0 - Active: 0
Maastrich
Maastricht UMC
  Registered patients - Total: 2 - Active: 2
Nijmegen
Radboud University Nijmegen Medical Centre
  Registered patients - Total: 36 - Active: 35
Rotterdam
Erasmus MC
  Registered patients - Total: 1 - Active: 1
Utrecht
Utrecht UMC
  Registered patients - Total: 1 - Active: 1
Poland
Warsaw
The Institute of Mother and Child
  Registered patients - Total: 1 - Active: 1
Portugal
Coimbra
Hospital Pediátrico de Coimbra
  Registered patients - Total: 8 - Active: 8
Lisbon
Centro Academico de Medicina de Lisboa
  Registered patients - Total: 10 - Active: 10
Porto
Hospital de Santo António
  Registered patients - Total: 6 - Active: 6
Taiwan
Taipei City, Taiwan
National Taiwan University Hospital
  Registered patients - Total: 7 - Active: 7
United States
Denver
University of Colorado Hospital
  Registered patients - Total: 10 - Active: 10
Philadelphia
Children’s Hospital Philadelphia
  Registered patients - Total: 13 - Active: 13
Washington
Children’s National, Washington DC
  Registered patients - Total: 13 - Active: 13

© EHOD 2012-2017